Colicky Baby?


Food Allergies Misdiagnosed as Colic

Our pediatrician, like many who have been presented with an infant with food allergies, initially told us babies just scream.  The next visit, we were told the same.  The next visit we were told it was colic.  Then our baby was prescribed acid reflux medicine.  Finally, after demonstrating more sever symptoms in the physician’s office, a food allergy was suspected.

FPIES, and other food allergies that can occur within the first year of an infant’s life, today are often misdiagnosed.  In our case, and in other’s of parents we’ve since met, our baby’s FPIES was misdiagnosed as colic.

Pediatricians Unaware – Parents Lead Diagnoses

According to researchers, food allergy doctors, and publications on the National Institutes of Health (NIH.gov) website, FPIES is still an under-recognized and misdiagnosed food hypersensitivity disorder.  A number of parents have told me, and have posted on their blogs, how many misdiagnoses their infants had before finally meeting a doctor who was familiar with FPIES and able to diagnose it and help manage the condition.

Awareness is the issue.  Until the healthcare system recognizes FPIES, including finally defining a diagnosis code and educating pediatricians, parents need to help create the awareness.  This website is here to help equip parents with info they can use to ensure their pediatricians know to look for food allergies like FPIES.  When a parent suspects it’s something worse than just colic or acid reflux, the discussion must be expanded.  Doctors cannot verify or rule out something they are unaware of.

Parents Know Their Babies

So, follow your instinct.  If you feel your baby is experiencing a different level of discomfort than your pediatrician’s diagnoses seems to explain, then FPIES and food allergies are worth discussing.  There are a number of other things that may be worth discussing and in the end your doctor’s diagnosis may be spot on.  But, when you feel the diagnosis isn’t quite right, you should do your research and present more possibilities.  I hope this website can help prevent your baby’s misdiagnosis.

See our page on Kids Food Allergy Info for information and resources to help you determine with your doctor(s) if your suspicions are correct.